Patients Rising Podcast

Congress + the Debate Right Now Over the Cures of Tomorrow

Episode Notes

Patients depend on the research and development cycle to produce innovative, life saving medicines for rare and chronic conditions. But this medical innovation faces hurdles if Congress passes medicare price negotiations within the Build Back Better Plan. 

Terry and Dr. Bob look at what this means for small, biotech companies creating the cures of tomorrow. And if you’re confused about drug development and pricing, Dr. Ron Cohen of Acorda Therapeutics breaks down the process and what it means for patients. 

Plus, get the patient perspective on the importance of rare disease research. Dorothea Lantz is the mom of Hunter, a 4-year old living with Prader-Willi syndrome. She explains why Congress must leave the Orphan Drug Tax Credit alone in order to protect the development of future treatments that could help patients like Hunter. 

Hosts: 

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent, Patients Rising

Guests:

Ron Cohen, MD, Founder, President and CEO, Acorda Therapeutics

Dorothea Lantz, Community Engagement Specialist, Prader-Willi Syndrome Association

Katie Moureau, Patient Correspondent

Nichole McLaud, Patient Correspondent

Links:

Democrats weigh health care provisions in $3.5 trillion bill

The High Costs of Democrats’ prescription drug price-setting

Rep. Ayanna Pressley And Congressional Colleagues Unveil Bill to Support People Experiencing Hair Loss

Merck pill seen as ‘huge advance,’ raises hope of preventing COVID-19 deaths

NORD Statement on Proposed Changes to the Orphan Drug Tax Credit

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The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.