Patients Rising Podcast

The Power of Patient Data

Episode Notes

Precision medicine harnesses the power of genetic data, which can improve treatment regimens and overall outcomes for patients. But accessing that data remains another challenge. Field correspondent Kate Pecora speaks with advocate Christine Von Raesfeld about how patient access to data can be a game-changer, and what can be done to expand that across the chronic disease community. 

Plus, did you see your 2022 Medicare premium go up? Terry and Dr. Bob discuss why. They also deliver health policy updates from Capitol Hill that impact patients, including new legislation introduced that would shed light on the practices of drug supply chain middlemen known as pharmacy benefit managers (PBMs). 

And June marks National Scleroderma Awareness Month. Patient correspondent Amy shares why more research funding is needed to understand this illness.

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent


Christine Von Raesfeld, CEO and Founder, People with Empathy

Amy Gietzen, Patient Correspondent 


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2022 Medicare Costs

Statement from HHS Secretary Becerra: 2022 Medicare Part B Premium Increase Attributable to Alzheimer's Drug Aduhelm

MDUFA Up for Renewal, Congress Recommends a Facelift | Patients Rising Now  

June Is National Scleroderma Awareness Month | NIAMS

Pharmacy Benefit Manager Transparency Act of 2022

Grassley, Cantwell Introduce Bipartisan Bill to Combat Rising Prescription Drug Prices and Provide More Transparency

Patients Rising Now Submits Comments to the FTC on the Impact of Pharmacy Benefit Managers on Patients

Patients Rising Now Joins over 100 Associations on Pharmacy Benefit Managers Letter

Prosperdtx Launches Strategic Collaboration with Health Equity Researchers and Seqster to Improve Health Equity for Cancer Patients

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The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.